Wednesday, February 01, 2023
Friday, January 27, 2023
Tuesday, January 24, 2023
This is an update/video from our daughter on the progress on Mighty Max:
Max had another good day. I finally got to be back crib-side in the ICU after four days of a head cold. I was wrong the other day in thinking they had weaned him completely from the precedex (his sedative). They had started to wean and he started having withdrawal symptoms, which is common. So they went back up on it today and he was so much more comfortable. They figured that they didn’t give him enough time to adjust to the clonadine (used to help wean from sedatives), so they’re just going to let him wean more slowly. They want to move his central line from his IJ (in his neck) to a picc sometime tomorrow. His femoral line is out and today they re-sutured his the pacer lines without local anesthetic. He did so well.