Wednesday, February 01, 2023

Kiddos Update

Feel like it's been a New York minute since I've posted here.  Last week was a few days of having the girls for overnights.  I love it but boy does it wipe me out.  She gets easier and easier to keep until she has her meltdowns.  It's funny that they don't happen much when it's just me.  She has a competition thing going with Snicklefritz, sibling-like.  Whatever Snicklefritz has or wants she wants too.  The sharing thing is a vague concept to her, trying to get across.  
Poor Snicklefritz gets frustrated too and ends up in the bedroom hiding out.  I get it.  Trying to reason with a 3 year old sometimes is frustrating and complicated.  Yet, when they are in sync they are the best of friends and Snicklefritz is so very good with her.  When they are around it's toys and toys and toys everywhere but the giggles outweigh all the inconvenience.  This week has been light in the Granny Taxi time because of our ice/sleet everywhere.  I do not, EVER venture out in this stuff.  I did have to head to the office on Monday but The Hubby carefully helped me into his truck and out at the door of the office so I could do invoicing.  The times to do that will be less and less, two more months worth actually!  March 31 will be the ending of invoicing.  The money will be still rolling in and the last of the payroll will be then if not before.  It's really a reality.  The office this week has been quiet as the employees are staying put, no one is going on jobsites.  The weather never stops The Hubby from going in to the office.  He goes in the same time every morning but what he is up to is beginning the cleaning out of the downstairs offices in readiness for my studio!!!!  He's really making a dent in files and furniture move out.  I thought it would take longer but with time on his hands he can't stand it.  I need, I want to go in and start boxing up files.  We will need to keep them in storage for I think 5 years and after that SHRED DAY!  
We've been trying to figure out what we are keeping in the office and what we are not keeping at this time and where exactly I'm going to set up.  Luckily we are keeping a nice drafting table I can use for drawing and watercolors.  I have my taboret table and various shelves, etc.  I have sooooooooooo many canvas's painted and unpainted.  A lot of them need to be repainted over.  I really don't need to buy a canvas again in my lifetime I think.  Yes, I'm moving out of my current studio in the next few months.  I hate that I won't be with Linda anymore but it is time.  What is nice is that she teaches out of her home too and has a standing offer for me to come to her class, free, to paint with everyone once a week.  When all this studio/office move gets straightened up and baby is home I will take her up on the offer.  I miss painting with other people.  I miss her company.

On the Max front, he is doing exceptionally well.  They've pretty much weaned him off of most things and his blood pressure is finally righting itself to normal levels.  Af finally gets to hold him now, with help as he does have a few things still attached.  He is even getting a lot of food through the tube in his nose!!!  Today the will be pulling most of the lines out.  
Honestly it's a possibility that he will get to come home in the next month until about June and the next surgery.
Oh that smile says it all.


While the girls are here at the house I've been setting up the watercolors.  I even brought in the little kids table but Min wants to sit by me at my big table.  I made the mistake of not taking the tablecloth off but it's watercolor.  I will take it off eventually as there is a plastic cover on the table that can get all kinds of stuff on it.  

I am doing a lot of these tiny watercolor things and plan on giving them for Christmas next year.  This one got snatched up by Af pretty quick.

I also, FINALLY, set up my Christmas present to me, my EdgePro Plein Air Easel.  I'm really hoping that this summer at the cabin to set up a lot outside to paint plein air.  This one a friend took the photo and said I could paint any of her photos.  She and her husband have been all over the world and she posts tons of great photos of places I will never go to,  i.e MOUNTAINS!  I think this one will be great when done.  I have a show to enter stuff into this spring and I need some things but I also have some already painted that I can enter.
The deer painting I'll finish at the studio.  I brought it home but just can't get back into it right now.  Honestly it's close to being done.  Thought I would put it in the show but it's a fall thing and the show is called "Spring Show" and they advised to maybe follow that.  Hmmmph...okay.  I know this is fall-y too but it's colorful.

Today, another day not leaving the house and not changing into real clothes.  I think tomorrow I will be out and about.  I'm sure that school will be back in session and will have to transport Min to school and will have to watch her on Friday morning, unless Bri watches her.  I have some stuff to wrap up at the office. We have a wedding to go to on Friday night and I HAD planned on doing a bit of clothes shopping this week to try to find something fluffy, not jeans wear, but this weather messed that up.  I'm sure I can rummage around in my closet for stuff.  Oh well, onward to the rest of the week.  

Toodles all!

 

Friday, January 27, 2023

Mighty Max...Update

3 Weeks Old and finally, FINALLY being held by his Momma.  Mighty Max is doing so well. They are weaning him off his meds slowly and there is a bit of withdrawal going on but that is expected.  He's smiling, hiccupping and making a few squeaky sounds.  He has not full out cried yet because one of his vocal cords is paralyzed but that, they think, will correct itself in time.  A nerve that is close to the surgery spot was affected.  This guy is a champion and we hope soon, very soon he may come home, at least for a time before surgery #2, then home for a few years.  Definitely a long but steady journey to stability.



Pure Love...

 

Tuesday, January 24, 2023

Mighty Max Update

This is an update/video from our daughter on the progress on Mighty Max:

Max had another good day. I finally got to be back crib-side in the ICU after four days of a head cold. I was wrong the other day in thinking they had weaned him completely from the precedex (his sedative). They had started to wean and he started having withdrawal symptoms, which is common. So they went back up on it today and he was so much more comfortable. They figured that they didn’t give him enough time to adjust to the clonadine (used to help wean from sedatives), so they’re just going to let him wean more slowly. They want to move his central line from his IJ (in his neck) to a picc sometime tomorrow. His femoral line is out and today they re-sutured his the pacer lines without local anesthetic. He did so well.

The new mystery (kind of) is that now that his tube is out, he can cry….but he’s still not making any sound. This can happen. We had ENT come in and do a scope (not fun
💔
) and it looks as though he has partial paralysis of one vocal cord. So it’s not completely paralyzed but “paretic”. Speech therapy will come in soon to do a swallow test to determine if it would cause aspiration during feeds and if so, they can treat it with an injection of something much like Botox. If not, then it IS something that will resolve itself over a few months. This was likely caused by the same stretching of nerves that affected his diaphragm after having his sternum split open for the Norwood surgery. Those two nerves are right next to each other. So the only sounds he makes are the tiniest, itty bittiest whimpers and it’s so sweet and sad and adorable, poor guy.
But overall today was good. We’re managing the withdrawals from sedatives, he’s been weaned from the INO machine (nitrous), his pressures, sats, and HR are good for the most part, and he’s more and more alert every day.
You’ll see in this video that he looks a little cross-eyed, but they assure me that it’s most likely from the weeks of sedation. He’s LOVING his pacifier and even roots for it. It’s beyond precious.

Monday, January 23, 2023

47 Years

Happy Anniversary The Hubby...47 years ago today we said I Do and it was the best decision of my life.  


 

Wednesday, January 18, 2023

Painting Challenges

Today I thought I would talk art with a smattering of Max.

Trying to get some painting time in lately has been a great challenge.  I started this oil painting last week and this is about as far as I've gotten.  My studio partner, Linda, finally came in and we started talking and talking.  I haven't seen her since November so we had a lot to catch up on.  One interesting thing is she and another friend have gotten a workshop set up for April in Broken Arrow!!!  In fact, it's  Chantel Barber and I own one of her little paintings and have always admired her.  The thing is she is an acrylics artist and I'm not but I will try it.  That said, we signed up right then and there.  Sometimes I NEED a workshop to shift my mind and inspire me.  I think there will be another on in late summer or early fall with a young gun named Kyle Ma (sooooooo good!)  
Since the oil painting thing isn't happening much I decided to whip out the watercolors and colored pencils for a change, because they are fairly portable.
This one turned out really nice.  I started it early Sunday morning, like 6 am, sitting by the fire at the cabin.  Fun.

This one was colored pencils that my best friend from high school gave me for Christmas.  It inspired me to dig out my many boxes of colored pencils.

Now on to Mighty Max.  He's progressing well.  Today I believe they will do a small procedure to tack a part of his diaphragm.  This kind of wrinkle is not allowing his right lung to inflate properly and if they get this fixed then he will be weaned off the vent and onward to being held and eating from bottle or breast.

Sunday, January 15, 2023

Visit with Max

This kiddo finally got to see her momma and little brother this weekend.  We were not sure it was going to happen because Max had a hiccup on Thursday when they started to extubate him.  His momma was in a bit of a panic and hopefully I settled her down but being away from family hugs was a bad place for her.  She was so worried that it would not be a good time for Min to visit but Max rallied and the visit happened. She is staying with The Hubby's cousin Dee Dee and Jack and it was been an absolute Godsend for Af to be with some kind of family.  They have a cute little dog, Twosy that just loved Min, and Jack and Dee Dee did too.  Min has that effect on people, wrapping you around her little finger.

Her parents were able to let her in to see Max and she was fantastic, coloring pictures, giving him a pacifier and tickling his feet.

The family complete.
I just love this photo of the two together.

Hard for Daddy to leave him again and Af, but life rolls on.
Sweet Max, Mighty Max!

Sunday, January 08, 2023

Max & Min Updates

He, Max, is four days old and has already been through a lot.  
While he is challenging the world I've been busy with Min and Christmas take down.  She has been my shadow for 7 days and I've totally loved it but boy am I tired.  There are reasons we have children while young.  It's non-stop 3 year old chatter.  Honestly she was pretty easy but you have to be on, always.  

On Friday one her momma's friends came and took her with her son to their Bouncing Beethoven's music class.  Then she took her back to their house for lunch, play time and a nap.  It was and gave me a much needed break.  Snicklefritz came over yesterday to spend the night and help keep Min busy.
Friday, before Min went to her day out she began helping me to finally take Christmas down.  These broken ornaments were NOT done by her, on no, they were totally my fault.  She was already gone and I was sitting on the couch wrapping ornaments for the box when I tipped the entire box over, face down and CRASH!  Well, just PHOOEY.  Well, I'm okay with it all.  Some were favorites but I can live with it.  

This photo was Min at her friends house.  This kiddo, every morning since she has been with me has awakened at 5:30 in the morning except for Saturday, which she slept in to 7:15.  So obviously she crashes as she did here just as they were to bring her home.  Poor kiddo.

We've really had a great time. 
We've played Candy Land, a 3 year old version.
We've painted...
and we've played on my IPad (sorry she figured out how to do my games.)
It has been a busy and emotionally draining week for all.  She is safely home with her Daddy and I will again be called up to cart her around to her various school things this week.  

Max is doing very well after his big surgery.  They still have to close him up the rest of the way but slowly to let the fluids not build up and wean him off some of the meds and the vent.  He is very strong and we are so hopeful he will be home sooner than later, until the next surgery in a few months.  

I almost forgot that I've revamped one of the guest bedrooms for Snicklefritz.  She had been in the front bedroom, they call it the pink room (formally my studio) but Min has kind of taken over that room and bed.  So I decided the green room need some spiffing up, some life.  All I did was start opening the curtains, new bed covering and some awesome pillow shams from Amazon.  She was so happy.

Thursday, January 05, 2023

The Norwood

Max

Today lots of prayers please.  He’s in such good standing that he’s been cleared for surgery today. This first surgery is called the Norwood. It is the longest and hardest but most necessary. This morning we will all be on pins and needles waiting for a most perfect outcome for this big boy. Prayers, lots of prayers please.
 

Wednesday, January 04, 2023

Max

Max is here all 8 lb 13 oz of him.  What a big boy.  2:29 am he made his presence known to the world.  Now we wait for the next part of his journey to see what the next step is.

Monday, January 02, 2023

Monday


 Good Monday morning.  It's 8:29 am and I'm sitting here waiting.  I decided to add a bit of bright sunshine here with the daffodils photo.  Looking forward to spring already and it's only January 2.  I'm waiting to get an email to pick up a small grocery order.  I'm waiting for little Mini to come and be my companion for the next week or two.  I'm waiting for the washer to stop so I can dry the sheets.  I'm waiting for my energy to pick back up so I can take down Christmas.  I seem to do a lot of waiting.  That's okay, I'm a very good waiter.  

This flu thing is getting better and better.  I thought this morning that if I had NOT had the vaccination I might have been a lot sicker.  Of course the rounds of Tamiflu have helped tremendously too.  Yesterday I felt so much better that I got nearly all of my laundry done.  I cleaned the kitchen, dishes and all and wiped surfaces with Clorox wipes.  Got to get rid of the flu germs before Mini arrives.  I even went around and gathered up a lot of the Christmas decor that was spread throughout the front of the house in preparation of storage for another year.  I've been thinking about how I'm going to keep a 3 year old entertained for an extended time.  If the weather keeps staying warm I think we will get Snicklefritz's old tricycle and clean it up and teach Mini how to ride it around the back patio.  Time spent in fresh air...CHECK!  She will also be in her day school Tuesday-Thursday, so there will be time for me to go to the office a bit or even to the studio.  At home maybe more watercoloring and the tricycling.  I'm going to try and not do too much TV time, keep her busy with other things, maybe helping me.  I'm going to try and get her to help in her food preparation, get the step stool out that Snicklefritz used to use a lot to help.  Got to keep her busy mind and body.  Trust me, I'm going to need a vacation when this all over...LOL!  Cabin time.  Looking forward to a lot of time spent at the cabin and possibly with her in tow along with Snicklefritz.  Feels like being a mom again, just a LOT OLDER!  We will get through this and before you know it Max will be here and a big part of our lives.  Tomorrow is the induction day so stay tuned for updates.