Max had his cardiology appointment yesterday. Great news: his heart function has improved! And it’s improved so much that it’s considered in the “normal” range now!! We are thrilled. He’s doing so well, and they don’t want to see us again for another four months! He still hasn’t really gained any weight, but they’re not concerned. His Mom and Dad will chat with our dietitian soon about switching over fully to the toddler formula, and that should help. It was pretty amazing to see him playing around in the play area of the hospital where Min played so many times last year while he lived upstairs in the CVICU. He’s doing really great with his g-tube feeds and oral feeds and is even starting to tolerate some bolus feeds with the toddler formula (bolus is basically how a baby would normally drink a bottle in one sitting, but via the tube - meaning, it’s like 70mL in 10 minutes, as opposed to a continuous feed of 70mLs per hour, if that makes sense). It’s basically one big step forward with his feeds and will help his stomach to know what it feels like to fill it more quickly and normally.
We are so proud of him and are so relieved to get such a good report.
These two are just so in love with each other. They are absolute besties. Precious.
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